About
Camp Perthes includes a wide range of activities such as a camp field trip to an amusement park, a Drone Flying STEM Program, horseback riding, archery, fishing and boating, zip lining, a high ropes course, a Perthes cooking class, swimming and waterslides, axe throwing and a shooting range, and quad/ATV biking. Campers also take part in The Amazing Race Scavenger Hunt, movie nights, the Camp Perthes Trivia Contest, karaoke, a Night Safari and Glow Parade, a nature hike and survivor class, a Hawaiian Luau, campfire stories and s’mores, and the Camp Perthes Talent Show, where parents are invited. The program includes a Perthes TEEN Program for ages 13–15 and a Q&A with Perthes doctors and surgeons, which parents are invited to attend.
• Ages: 7–15 years old
Camp Perthes is run by Perthes Kids Foundation, a nonprofit organization originally established in 2007 by CBS Survivor: Fiji winner Earl Cole, in partnership with the University of Kansas Endowment Fund, as the Earl Cole Fund for Perthes Research. Perthes Kids Foundation became an independent, non-profit organization solely dedicated to Legg-Calvé-Perthes disease in 2015 and has a mission to make an immediate, positive impact on the lives of children diagnosed with Legg-Calvé-Perthes disease. Each camp generally has between 35–70 kids, all diagnosed with Legg-Calvé-Perthes disease, and fun activities, sports, and games are customized for various mobility restrictions due to Perthes. Around 10–20 adult volunteers support the camp, including a mix of parents, medical students or staff, and adults with Perthes.
Perthes Kids Foundation is a certified nonprofit organization under Section 501(c)(3) of the Internal Revenue Code and is not a private foundation as defined in Section 509(a), and gifts to it are deductible under Section 170(b). The foundation is the leading organization dedicated to a growing community of parents, kids, doctors, family members, and adults with Perthes from all over the world and is the producer of a short film documentary, Rare Kind (2024), which focuses on the journey of children diagnosed with Perthes disease. Perthes Kids Foundation has formed a partnership with Miracle Flights to provide free flights for kids with Perthes disease to attend Camp Perthes USA and visit Perthes doctors around the country, through the Perthes Kids Fly Free Program, which is now closed but scheduled to return in 2027. The foundation also partners with Betsy Miller and Thinking Ink Press, the author and publisher of The Parents’ Guide to Perthes: Understanding Legg-Calvé-Perthes Disease, and is working toward the inaugural Camp Perthes Español in 2027 in South America with Perthes Kids Foundation Español and the ALIBER organization. One camper described the experience by saying, “Perthes can't stop me, I can still fly.”
Last updated April 3, 2026.
• Ages: 7–15 years old
Camp Perthes is run by Perthes Kids Foundation, a nonprofit organization originally established in 2007 by CBS Survivor: Fiji winner Earl Cole, in partnership with the University of Kansas Endowment Fund, as the Earl Cole Fund for Perthes Research. Perthes Kids Foundation became an independent, non-profit organization solely dedicated to Legg-Calvé-Perthes disease in 2015 and has a mission to make an immediate, positive impact on the lives of children diagnosed with Legg-Calvé-Perthes disease. Each camp generally has between 35–70 kids, all diagnosed with Legg-Calvé-Perthes disease, and fun activities, sports, and games are customized for various mobility restrictions due to Perthes. Around 10–20 adult volunteers support the camp, including a mix of parents, medical students or staff, and adults with Perthes.
Perthes Kids Foundation is a certified nonprofit organization under Section 501(c)(3) of the Internal Revenue Code and is not a private foundation as defined in Section 509(a), and gifts to it are deductible under Section 170(b). The foundation is the leading organization dedicated to a growing community of parents, kids, doctors, family members, and adults with Perthes from all over the world and is the producer of a short film documentary, Rare Kind (2024), which focuses on the journey of children diagnosed with Perthes disease. Perthes Kids Foundation has formed a partnership with Miracle Flights to provide free flights for kids with Perthes disease to attend Camp Perthes USA and visit Perthes doctors around the country, through the Perthes Kids Fly Free Program, which is now closed but scheduled to return in 2027. The foundation also partners with Betsy Miller and Thinking Ink Press, the author and publisher of The Parents’ Guide to Perthes: Understanding Legg-Calvé-Perthes Disease, and is working toward the inaugural Camp Perthes Español in 2027 in South America with Perthes Kids Foundation Español and the ALIBER organization. One camper described the experience by saying, “Perthes can't stop me, I can still fly.”
Last updated April 3, 2026.
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